Friday, 19 March 2010 00:00
On Saturday, April 10, there will be a soccer clinic fundraiser followed by a men’s game between Hofstra and Adelphi, all as a way to benefit the Long Island FSHD Foundation.
Both events will take place at John J. Burns Park. The clinic starts at 5:30 p.m. and is for those players in the U7 to U12 league. The game starts at 7:30 p.m. To register visit www.lifshd.com.
At the clinic, each child receives soccer tips from top-rated Hofstra and Adelphi players. They also receive a T-shirt and a free admission to the 7:30 p.m. game.
The day includes great raffles, food, and plenty of excitement. Both events will be held rain or shine.
The Long Island FSHD Foundation is a 501(c)(3)non-profit organization dedicated to the effort of eradicating the life-altering effects of facioscapulohumeral muscular dystrophy (FSHD). Its organizers describe the foundation as an independent, volunteer foundation providing funding to research scientists in the hope that stimulating scientific research in the field of FSHD will lead to an effective treatment and eventually a cure.
FSHD usually strikes during the teenage years. By age 20, 95 percent of individuals with FSHD will have symptoms related to muscle weakening. At the present time, FSHD patients are faced with the harsh reality that they are living with a progressive disease for which there is no treatment and no cure.