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Letter: Congress: Take Action On Alzheimer’s Disease

There is a crisis brewing in this country and it is one that does not get enough attention.  That crisis is the growing number of people diagnosed with Alzheimer’s Disease and the fact that there is no way to prevent, stop or even slow its progression. Over 5 million people are currently living with this disease, with over 300,000 living in New York State.  If left unchecked, there may be as many as 14 million people living with this disease by mid-century. 

 

There are also 15.5 million friends and relatives who work tirelessly as caregivers for their loved ones who slowly forget who they are, how to take care of themselves and how to do basic things like go to the bathroom and swallow. In addition to the human toll,

Alzheimer’s is the most expensive condition in the nation, costing $214 billion a year.  This number will rise to the trillions by 2050. If we could eliminate Alzheimer‘s tomorrow, we could save half a million lives every year, not to mention the cost savings that would result.

 

My mother suffered with this horrible disease for over 20 years and my father, husband and I were her primary caregivers. Cures were promised but none came to fruition and, alarmingly, they have not to this day.  More dollars need to be allocated to finding a cure and to helping caregivers.

 

On April 9th, more than 800 people living with Alzheimer’s, caregivers and advocates from across the nation will gather in Washington DC for the 26th Annual Alzheimer’s Association Advocacy Forum. The main focus of the Forum will be to appeal to members of Congress for action on Alzheimer’s Disease.

 

It is my honor to be an Alzheimer’s Ambassador to Congressman Steve Israel. He fully understands the magnitude of this crisis and continues to be a champion of our cause. To learn how you can get personally involved in the fight against Alzheimer’s, please visit alz.org.

 

Kathy Scopp Distler


News

More than 475 runners from all across Long Island, came together on Aug. 30, for the tenth annual Companions in Courage one-mile run.

 

For Andrea Kopatka, 49, of Levittown, this was her first race in three years. 

 

“I wanted to run this race before I turned 50,” she said. “It was on my bucket list.” 

Over the summer, 13-year-old Zachary Martin of Levittown was named an All-American athlete for his performance on the gridiron, earning him an invitation to the ninth annual Offense-Defense Youth All-American Bowl in Orlando, Fla.

 

Martin, a defensive lineman for the Wisdom Lane Middle School Wildcats, said he was selected among a group of young athletes after attending a rigorous five-day football camp at LIU Post.  


Sports

The National Brain Tumor Society hosts its Long Island Brain Tumor Walk on Saturday, Sept. 20 at Jones Beach State Park, 1000 Ocean Parkway, Wantagh. Registration is from 8 to 9 a.m. Programs and activities run from 8 a.m. to noon.

Michelle Duffy of Levittown was recently named head coach for the Blue Angels’ cross country program at the College of New Rochelle. 

 

“We are very pleased to have a coach with Michelle’s pedigree take the reins of our cross country program,” said Athletics Director Harold Crocker. “Her success athletically and academically, as well as her ability to mentor and guide young women, makes her the ideal coach for the Blue Angels.”


Calendar

Island Trees Board of Education - September 17

Mini-College Fair - September 17

All-Star Comedy Show - September 18


Columns

1959: The Year The Music Stopped Playing
Written by Michael A. Miller, mmillercolumn@gmail.com

The Eccentric Heiress Of ‘Empty Mansions’
Written by Mike Barry, MFBarry@optonline.net

Yellow Margarine And A Pitch For The Ages
Written by Michael A. Miller, mmillercolumn@gmail.com