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Editorial: Getting In Baby Thomas’ Corner

Orphan diseases are rare maladies that strike a small percentage of the population and as such, people afflicted by them usually do not have the benefit of support groups, nonprofit support or extensive medical research being done in search of a cure. Unfortunately, little  Thomas Kevin Onorato, whose great-uncle is Garden City dermatologist is Dr. Joseph Onorato, is in this quandary after being diagnosed with microvillus inclusion disease. Born on September 10, 2013, Baby Thomas has already endured a battery of tests that would sap the will out of the most hardened adult including multiple blood transfusions, colonoscopies, a pair of endoscopies and intestinal biopsies. That said, he and his parents Tom and Melissa are fighting the good fight with as positive an approach is possible under these horrible circumstances. To that end, Baby Thomas’ folks are holding a fundraiser at Franklin Square’s Plattduetsche Park Restaurant on Saturday, April 19 to raise money to defray medical costs, but to also raise awareness around this extremely rare disease. The hope is that with community support, microvillus inclusion disease might not be as much of a hardship for children up to and including Baby Thomas going forward in the future.

—Dave Gil de Rubio

News

North Shore-LIJ’s Cushing Neuroscience Institute (CNI) recently announced that Garden City resident Richard E. Temes, MD, MS, has been appointed director of the Center for Neurocritical Care at North Shore University Hospital and assistant professor of neurology, neurological surgery and internal medicine at the Hofstra North Shore-LIJ School of Medicine.

“Dr. Temes is a nationally recognized leader in neurocritical care and we are delighted to have him on board to spearhead our efforts in further expanding the neurocritical care services program,” said Raj K. Narayan, MD, chair of neurosurgery at North Shore University Hospital and Long Island Jewish Medical Center and CNI’s director. For the past seven years, Dr. Temes served as director of the neurocritical care program he founded at Rush Medical Center in Chicago, Ill. He also served as the hospital’s medical director of the Neuroscience Intensive Care Unit and as director of the Therapeutic Hypothermia Service. Under Dr. Temes’ leadership, he established Rush’s neurological emergencies transfer center, which grew to transfer 1,200 patients annually from over 30 institutions throughout southern Wisconsin, Illinois, Indiana and western Michigan.

‘Landscape-altering’ bug creeping north

It’s a cute little ‘bug.’ What it represents, however, is anything but cute.

An unusual-looking Volkswagen is toodling around Long Island this month. Painted to resemble the Asian longhorned beetle (ALB), the VW Beetle is part of efforts by the US Department of Agriculture to eliminate the pest, which can destroy 70 percent of an area’s tree canopy, according to the agency. Initially, officials held hope for complete eradication from about 23 square miles of the Island designated as infested or at risk by 2016. Instead, this “landcape-altering pest” is spreading.


Sports

Garden City falls to Brentwood

after beating Farmingdale

The Farmingdale Baseball League recently capped off its fourth annual 9/11 baseball tournament with a series of championship games, to ultimately determine which Long Island town reigns supreme. On Aug. 16, teams from 8U to 14U fought tooth and nail for the ultimate prize.

One of the most exciting games was the evening 14U championship match-up between the Garden City Warriors and Brentwood Braves.

Fall Roller Hockey Programs Announced

The Garden City Recreation and Parks Department will once again offer various roller hockey programs this fall for both youth & adults who reside in the Inc. Village of Garden City. Whether you played in the past or looking to get involved, there is no better time to sign up and experience all the fun. All programs take place at the roller rink located at Community Park. Please note at this time, the recreation department is just announcing its programs. Fees and registration information will be announced at a later date.

This season, the roller hockey programs are broken down into grades. Please pay careful attention as grades and dates/times have changed:


Calendar

Alice in Nanoland

Thursday, August 28

Nature’s Nighttime Noises

Saturday, August 30

Art With A French Twist

Thursday, September 11



Columns

1959: The Year The Music Stopped Playing
Written by Michael A. Miller, mmillercolumn@gmail.com

The Eccentric Heiress Of ‘Empty Mansions’
Written by Mike Barry, MFBarry@optonline.net

Yellow Margarine And A Pitch For The Ages
Written by Michael A. Miller, mmillercolumn@gmail.com