Written by Angela Anton, email@example.com Friday, 24 May 2013 00:00
A number of years ago, I recall a good friend of mine being the victim of recurring kidney stones. He described it as feeling like someone was jabbing a sharp knife into his kidney every time one of his stones moved. As uncomfortable as that sounds, imagine what it might feel like to a child. It turns out that is a very real problem kids experience because of two conditions they come down with: Oxalosis and Primary Hyperoxaluria (PH). I only just learned of this after I was contacted by Tricia Dalto-Schettino, a representative from the Oxalosis and Hyperoxaluria Foundaton (OHF).
It turns out that OHF is the only foundation in the world dedicated to not only improving the care and treatment of Oxalosis and Hyperoxaluria but also trying to find a cure for them along with other related stone diseases that target kids. OHF was founded over 20 years ago by parents of children suffering with these kidney stone diseases. In the time since, the organization has made great strides that included funding the Mayo Clinic Hyperoxaluria Center, the only clinical care and research center staffed by medical scientists devoted to the study of PH. OHF has also raised millions of dollars to finance research that has significantly advanced the medical world’s understanding of the disease. That said, continued medical advancements are necessary to enable the discovery of more effective treatments for PH.
To that end, last year’s inaugural OHF Summer Gala, which was hosted by Garden City residents Paula and Brandon McGovern, was a rousing success. Both McGoverns have been intensely involved with OHF ever since their 2-year-old daughter was diagnosed with PH when she was 6 months old. With this gala taking place on June 14, 2012 at the New Hyde Park Inn (NHPI), OHF wound up raising more than $175,000 for the benefit of the organization. Expect more of the same when OHF returns to the NHPI on Thursday, May 30.
For more information about the OHF and the gala, please visit www.ohf.org or go to www.facebook.com/ohf.summergala
The second thing that is near and dear to my heart is the Nassau County Museum of Art, which will be hosting its 2013 Museum Ball on Saturday, June 8 starting at 7 p.m. This year’s theme is The Great Gatsby, a nod to the book that celebrated the glamorous Gold Coast era immortalized by not only author F. Scott Fitzgerald but by the recent film adaptation directed by Baz Luhrmann.
Seeing as I grew up on the North Shore, I’ve always had a soft spot in my heart for all of these regal old mansions so it’s only fitting that the Nassau County Museum of Art is located on the 145 acres that make up the former Frick Estate. So in the interest of full disclosure, I am on the board of trustees in addition to being the chair of the ball committee, a responsibility I embrace given how much I love the museum.
I’ve been going to the Nassau County Museum of Art for years and every time I return, I’m always impressed by how beautiful the grounds are, along with the sculptures that can be seen once you start strolling around. The inside is just as impressive thanks to the New York City-quality exhibits they have that can be seen by residents of Nassau County. I just don’t think the public is aware of this museum that is accessible, affordable and for everybody.
Which is why the elegant black tie evening of dining and dancing that is the 2013 Museum Ball is so important. It is the museum’s major annual fundraiser and as well as always being a highlight of the local social calendar, the ball provides an important component of the museum’s operating budget, offering support for an ambitious schedule of exhibitions and stimulating educational programs for adults, students, families and school groups.
For information on donor
packages, opportunities for sponsorships or business partnerships, or to inquire about journal advertising, please visit www.nassaumuseum.com or call 516-484-9338, ext. 16. It’s going to be an evening you won’t easily forget.